Even the sun needs downtime

Even the sun needs downtime

“Wow—so much to do—don’t get bogged down with the burden of disease. Try to keep your composure and quality of life.” This was the start of a message I recently received from my nephrologist. This great advice, while sometimes easier said than done, really spoke to me...
Bounce back, give back: Part 2

Bounce back, give back: Part 2

Giving back has been a very important part of my journey since 2004 when I first learned of the PKD Foundation. I founded a local Chapter in Pennsylvania and shared my story in front of an audience for the first time in Anaheim, Calif. at a PKD Conference and my...
Bounce back, give back: Part 1

Bounce back, give back: Part 1

I was in disbelief when I read the thermometer and saw my temperature was 101.2. The first thing I thought of was how Noah and I needed to be on a plane in three days to Aspen, Colo., where I would receive the Bounce Back, Give Back Award from the Chris Klug...