I was in disbelief when I read the thermometer and saw my temperature was 101.2. The first thing I thought of was how Noah and I needed to be on a plane in three days to Aspen, Colo., where I would receive the Bounce Back, Give Back Award from the Chris Klug Foundation (CKF) on top of Aspen Mountain at their annual Summit for Life event. Due to an ongoing and serious illness, I was devastated at the thought of missing this.
Next thing I knew, Noah and I were headed to the hospital where I was quickly admitted for having sepsis for the fourth time in fourteen months due to Primary Sclerosing Cholangitis (PSC). So many thoughts, emotions and questions flooded my mind that first evening in the hospital. Since we knew what caused my sepsis and that daily IV antibiotics would be necessary over the next several weeks, before long, Noah and I found ourselves Googling infusion centers in Aspen. When we learned there was one 10 minutes from our hotel, our eyes met with a glimmer of hope. We became cautiously optimistic and excited that our trip might still be possible.
My body responded positively to the IV antibiotics, my lab levels improved quickly and my overall health stabilized fast. I shared with my doctors how important this trip was to me, conveyed my thoughts and medical concerns and asked if it was feasible to make the trip. All of my doctors gave me their blessing to go.
Since I was traveling out of state and my doctors only practice in California, I had to find a doctor in Colorado that would co-sign my infusion order. I scheduled my daily appointments with the Aspen Infusion Center and they scheduled an appointment for me with a local doctor, Dr. Kadison. When I got into Aspen, I met with Dr. Kadison and she co-signed my order, allowing me to go to the local infusion center every day to receive my treatments. I was a little apprehensive about flying to Aspen right after being discharged from the hospital in California, but doing so taught me so much.
I was reminded that where there is a will, there is a way. I learned the importance of not letting our health limit us from traveling and enjoying life. I was so proud of my mental and physical determination to “bounce back” from this latest hospital stay and battle with sepsis. It was invigorating to not let my need for daily IV antibiotic treatments keep me at home, and it was empowering to do the legwork to continue my care in Aspen. I was truly living up to the name of the award by bouncing back and doing whatever it took to attend CKF’s Summit for Life. The trip was so amazing, it was worth every second of the effort it took to get there. Stay tuned for my next post sharing my extraordinary experience receiving the Bounce Back, Give Back award.
How have you bounced back and what have you learned from doing so?