by PKD Foundation Staff | Aug 20, 2019 | Advocacy, Awareness, Positivity, Q and A
We sat down with Paige Trischler to learn what’s new in her world and how she navigates living with PKD as a teenager. PKD Foundation (PKDF) Hi Paige! What’s new since the last time you shared your story with the PKD Foundation? Paige Since you heard from me last, I...
by PKD Foundation Staff | Aug 13, 2019 | Advocacy, Awareness, Education
As lawmakers get ready to return from the August recess, PKD Foundation sat down with Alexis Denny, Director of Government Affairs, to learn more about the intricacies of the general Federal Budget process and how it pertains to the PKD community and the PKD...
by PKD Foundation Staff | Aug 2, 2019 | Advocacy, Awareness, Education
As the only organization in the U.S. solely dedicated to finding new treatments and a cure for PKD, we understand how important it is to increase awareness of the disease and showcase its impact on patients, their families, and caregivers. Sharing the PKD message is...
by PKD Foundation Staff | Jul 23, 2019 | ADPKD Registry, Advocacy, Awareness, Education
The PKD Foundation prides itself on being an accessible resource for PKD patients, families and caregivers. But we also understand the need to provide practical ways for PKD patients to play a proactive role for themselves and future generations. The upcoming ADPKD...
by PKD Foundation Staff | Jul 16, 2019 | Advocacy, Awareness
Last Wednesday, Director of Government Affairs Alexis Denny attended the signing of an executive order titled Advancing American Kidney Health. This order and its accompanying policies mark one of few times a sitting president has brought chronic kidney disease — and...
by PKD Foundation Staff | Jun 25, 2019 | Advocacy, Q and A
This month, we sat down with Alexis Denny, Director of Governmental Affairs at the PKD Foundation (PKDF), to learn more about the approval of HR 2740 and what the bill means for PKD patients and their families. Q: What is HR 2740? Alexis: HR 2740 is a bill approved by...
