by PKD Foundation Staff | Jun 4, 2019 | ADPKD Registry, Advocacy, Awareness, Education, Q and A
Published June 4, 2019 In May we announced the upcoming ADPKD Patient Registry, a collection of individuals with Autosomal Dominant Polycystic Kidney Disease (ADPKD). This month, we sat down with Elise Hoover, Director of Research at the PKD Foundation (PKDF), to...
by PKD Foundation Staff | May 14, 2019 | ADPKD Registry, Advocacy, Awareness, Education
Published May 14, 2019 PKD patients are very well-informed about their disease and its consequences. As a disease impacting multiple generations or appearing unexpectedly as a spontaneous mutation, patients and their families witness first-hand the progression of the...
by PKD Foundation Staff | May 2, 2019 | Awareness, Education
If you follow us on social media (Facebook, Twitter, Instagram and LinkedIn), we hope you’ve already heard about our exciting new partnership with Discovery Communications / Discovery en Español. Knowing how important it is to share information about polycystic kidney...
by admin | Apr 9, 2019 | Awareness, Walk for PKD
My name is Lindsay Roper, I grew up in northern California and met my husband Alan while we were going to college in Utah. We married and moved to Orem, UT, where we live with our daughters Sadie (2 ½ years) and Lacey (3 months). As a mother of a child with a rare...
by PKD Foundation Staff | Mar 22, 2019 | Awareness, Education
For this week of National Kidney Month, our challenge to you was to tell someone new! Spreading the word is an empowering thing you can do for the community, no matter how PKD affects you. To show this, we asked our Marketing Specialist, Tierra Hogan, a non-patient,...
by PKD Foundation Staff | Mar 8, 2019 | Awareness
My name is Paige Trischler, but I also go by Elisabeth Rae. I am 16 and from Pittsburgh, Penn. I was diagnosed with PKD in October 2015 and got in involved with the PKD Foundation through going to Chapter meetings. One of the amazing ladies in the Pittsburgh Chapter...
