by Sydney Johnston | Jun 21, 2022 | Awareness, Fundraise Your Way
Published on June 21, 2022 | A PKD patient, advocate, and PKDF volunteer, Glenn Frommer organized the RideForPKD to raise $500,000 for PKD research. On May 1, Glenn Frommer kicked off his journey across the country. And after nearly two months on the road, we’re...
by Sydney Johnston | May 24, 2022 | Awareness, Education
Published on May 24, 2022 | May is Mental Health Awareness Month. With chronic illnesses, like ARPKD and ADPKD, mental health is an important factor of your overall care plan. Whether you’re a patient with PKD, caregiver, or family member, taking charge of your...
by Sydney Johnston | Apr 19, 2022 | Awareness
Published on April 19, 2022 | When it comes to polycystic kidney disease, we all want to feel like we’re making a difference. Some of join clinical trials, others volunteer with the Walk for PKD or serve as peer mentors. But Glenn Frommer had something big in...
by Sydney Johnston | Apr 12, 2022 | Awareness
Published on April 12, 2022 | Join us in celebrating National Volunteer Week 2022 on April 17-23! Volunteers are the heart of the PKD community, ensuring no one faces polycystic kidney disease alone. In 1987, the first local volunteer community was formed. Since then,...
by Sydney Johnston | Mar 7, 2022 | Awareness
Published on March 7, 2022 | Every March, we recognize the importance of kidney health. It’s a time dedicated to raising awareness, sharing education, and advocating for kidney health equity. For National Kidney Month 2022, we’re sharing resources and...
by Sydney Johnston | Jan 18, 2022 | Awareness
Published on January 18, 2021 | Looking for a hands-on way that you can support PKD research? Fundraise Your Way allows you to take your passion and turn it into a PKD fundraiser. Whether it’s for just one day or all year long, there are countless options with...
