by Sydney Johnston | Aug 18, 2022 | Awareness
Published on August 19, 2022 | Every two years, thousands of transplant recipients, living donors, donor families, individuals on waiting lists, caregivers, transplant professionals, and supporters gather for the world’s largest celebration of life— the Transplant...
by Sydney Johnston | Jun 21, 2022 | Awareness, Fundraise Your Way
Published on June 21, 2022 | A PKD patient, advocate, and PKDF volunteer, Glenn Frommer organized the RideForPKD to raise $500,000 for PKD research. On May 1, Glenn Frommer kicked off his journey across the country. And after nearly two months on the road, we’re...
by Sydney Johnston | May 24, 2022 | Awareness, Education
Published on May 24, 2022 | May is Mental Health Awareness Month. With chronic illnesses, like ARPKD and ADPKD, mental health is an important factor of your overall care plan. Whether you’re a patient with PKD, caregiver, or family member, taking charge of your...
by Sydney Johnston | Apr 19, 2022 | Awareness
Published on April 19, 2022 | When it comes to polycystic kidney disease, we all want to feel like we’re making a difference. Some of join clinical trials, others volunteer with the Walk for PKD or serve as peer mentors. But Glenn Frommer had something big in...
by Sydney Johnston | Apr 12, 2022 | Awareness
Published on April 12, 2022 | Join us in celebrating National Volunteer Week 2022 on April 17-23! Volunteers are the heart of the PKD community, ensuring no one faces polycystic kidney disease alone. In 1987, the first local volunteer community was formed. Since then,...
by Sydney Johnston | Mar 7, 2022 | Awareness
Published on March 7, 2022 | Every March, we recognize the importance of kidney health. It’s a time dedicated to raising awareness, sharing education, and advocating for kidney health equity. For National Kidney Month 2022, we’re sharing resources and...
