by PKD Foundation Staff | Dec 17, 2019 | ADPKD Registry, Awareness, Chapters, Donations, PKD Connect, Research, tolvaptan
It’s a thrilling time here at the PKD Foundation. We have so much success to celebrate this season and so many reasons to hope, because of you! Your support is fueling our unprecedented progress in PKD research and care. In 2019, we Awarded research funding to...
by PKD Foundation Staff | Jun 11, 2019 | ADPKD, Chapters, Q and A, Transplantation
Diagnosed with PKD nearly 20 years ago, Karyn Waxman helped establish the Memphis Chapter and has acted as its coordinator for the past 19 years. Her passion lies in heightening PKD awareness through fundraising events, talking to anyone and everyone about PKD, and...
by PKD Foundation Staff | Feb 4, 2019 | Chapters
Our nationwide Chapters are a wonderful way to connect with your local PKD community! New York City Chapter Co-Coordinators Sarah Giller and Meg Munits know this best, and were excited to share how getting involved impacted their PKD journeys: PKDF: Tell us a little...
by PKD Foundation Staff | Jan 23, 2019 | Chapters
Greetings from Kim and Mike Ahrens! We are Co-Coordinators for the Detroit Chapter along with Cheryl Sherman. Our PKD journey began when Kim was diagnosed with PKD in 2005 while she served as Executive Director of Finance in Grand Rapids for Booth Newspapers/Advance...
by PKD Foundation Staff | Oct 22, 2018 | Chapters
My name is Jean Sommer and I am the St. Louis Chapter and Walk Coordinator. In 2001, I was diagnosed with ADPKD2. My sister and brother have it also. My sister and I have rare massive Polycystic Liver Disease (PLD). After our mom died from complications after brain...
by PKD Foundation Staff | Aug 15, 2018 | Chapters
My name is Erin Burden and I live in Metro Atlanta with my husband, Christopher, and our three children. We first learned of PKD when my oldest daughter’s ultrasound revealed some kidney abnormalities in utero. Since she is a fraternal twin, I was having scans...
