by Sydney Johnston | Jan 26, 2023 | Awareness, Fundraise Your Way
Published on January 26, 2023 | Each of us can help #endPKD. For many, collecting donations is one of the first things that comes to mind. But how do you start your own PKD fundraiser? Through Fundraise Your Way (FYW), you can take your passion and turn it into a way...
by Sydney Johnston | Jun 21, 2022 | Awareness, Fundraise Your Way
Published on June 21, 2022 | A PKD patient, advocate, and PKDF volunteer, Glenn Frommer organized the RideForPKD to raise $500,000 for PKD research. On May 1, Glenn Frommer kicked off his journey across the country. And after nearly two months on the road, we’re...
by Sydney Johnston | Feb 8, 2022 | Fundraise Your Way
Published on February 8, 2022 | While we can’t all be PKD researchers, there are other ways to make an impact. Fundraising for PKD through Fundraise Your Way is a great option! Once she heard about the program, Annette Minnich knew this was the perfect way for...
by Sydney Johnston | Sep 14, 2021 | DIY for PKD, Fundraise Your Way
Published on September 14, 2021 | Over the past two decades, the Driving Home A Cure For PKD Golf Tournament has raised more than $1.5 million for research and education programs to help improve the lives of those affected by PKD. Organized by Karyn and Jerry Waxman,...
by Sydney Johnston | Jul 8, 2021 | Awareness, DIY for PKD
Published July 08, 2021 | When you receive a diagnosis, it’s easy to focus on the negatives. Instead of being pessimistic, Rob Herman is focused on creating change for PKD. Today, he details his experience with PKD, how he spreads PKD awareness, and his creative...
by Sydney Johnston | Jun 16, 2020 | Awareness, DIY for PKD
Published June 16, 2020 | Even the simplest act can have a huge impact. While the ongoing pandemic has kept many indoors, Toni Stuart used this time at home to raise awareness of PKD. With the help of her family and her own two hands, she sewed cloth masks to benefit...