by PKD Foundation Staff | Jul 26, 2018 | PKD Will Not Beat Me
Sometimes the littlest thing at an unexpected time can trigger emotions that have been building up for a while. For me, it was a hospital food tray. On Dec. 2, 2017, I woke up severely ill with a high fever. This was the fourth time I had sepsis in the past year. Noah...
by PKD Foundation Staff | Jul 12, 2018 | PKD Will Not Beat Me
I’m a very active participant in my healthcare. I am passionate about being the best advocate for myself and others. However, there is always room for improvement and I have one area that has been a struggle for me: accepting help. I’m a 35-year-old, married,...
by admin | Jun 22, 2018 | PKD Will Not Beat Me
My parents live in Pennsylvania and my dad is currently visiting me in California. He is at our home helping us out for a week. He took me to San Francisco for a liver procedure that I needed as part of the process for getting approved to be listed for a liver...
by PKD Foundation Staff | Jun 14, 2018 | PKD Will Not Beat Me
I’ve met individuals who are stubborn when it comes to seeing a doctor. As someone who has been seeing doctors since I was a child, though, I know I wouldn’t be alive today if it wasn’t for their knowledge, skill and guidance. I look at the doctor/patient relationship...
by PKD Foundation Staff | May 24, 2018 | PKD Will Not Beat Me
Last week, my mom, Pam, faced her fear and flew alone for the first time, from Pennsylvania to California, to be with me for Mother’s Day. In celebration of her turning 62 this month and Mother’s Day, I wanted to do a special Q&A with her. I sat down with my mom,...
by admin | May 10, 2018 | PKD Will Not Beat Me
“You received your treatment for PKD when you received my kidney. Instead of moving on and focusing on your life, you have dedicated it to helping other PKD patients.” This beautiful sentiment from my kidney donor, Sally, was part of a moving conversation we shared on...
