Determination

Determination, the “D” in my PKD! Because so many members of my family grapple with PKD, or have died from it, I have developed a strong connection with those who endure the pain and suffering caused by every form of kidney ailment. Sharing my story at a press event...

Knowledge

Knowledge, the “K” in my PKD! Rather than fear, try and understand! This is what I live by. When first learning of PKD, or after living with it for almost 20 years, like myself, it can seem scary. I have learned that the more knowledge I have gained, the more...

Positivity

Positivity, the “P” in my PKD! The power of positive thinking has no limits! Every morning when we wake up, we have the choice to be positive, happy, and grateful or to get up on the other side of the bed. It amazes me how our mood in the morning seems to lay the path...

A+ for the Affordable Care Act

At the end of every PKD Educational Seminar I have attended, there was always one question that broke my heart. A mother or father would raise a hand and say: “I am afraid, for health insurance reasons, to get my child tested to determine if they have PKD.” I would...