Knowledge, the “K” in my PKD! Rather than fear, try and understand! This is what I live by. When first learning of PKD, or after living with it for almost 20 years, like myself, it can seem scary. I have learned that the more knowledge I have gained, the more empowered I feel, and the less fear I have.
Since 2004 , when I first learned of and started volunteering with the PKD Foundation, I have gained tremendous knowledge of PKD. I lived with PKD for 12 years before knowing that the PKD Foundation existed. I hope that no one else will have to go that long without this wonderful resource. From the website, to conventions, to events, I learned so much not only about the disease but also about myself.
The friendships and knowledge I have gained from other PKD survivors are priceless. It is comforting to know that we are not alone and not the only ones enduring lower back pain, high blood pressure, cyst bleeds and so on.
This knowledge has had a ripple effect in my life. The knowledge I have gained has made me feel more in control of my health and my own best advocate. It has empowered me to use my voice to share what I have learned with others and help to raise awareness of PKD, to END PKD.
I hope the knowledge and support you gain through the Foundation and by connecting with others will provide comfort to you on your journey.
How has knowledge helped you?