Balancing The Unknowns

I didn’t have time to prepare and worry about my kidney transplant. Things happened quickly and my focus was surviving each individual day. My cysts would not stop bleeding and my football-sized kidneys had to be removed. I was too sick to be placed on the transplant...

Explore Transplant

We just finished Kidney Month, and today marks the beginning of Donate Life Month. For people with PKD, transplantation is never far from our thoughts, so I’m focusing today’s blog on this topic. When I was in need of a living kidney donor to lift me off death’s...

A Fond Farewell

When living with a genetic disease, such as PKD, we have seen and felt the effects of it throughout multiple generations. Quite often I hear others share stories of numerous family members they have lost, who have battled PKD. No matter what we are fighting, most of...

PKD Will Not Beat Me

PKD Will Not Beat Me is my motto, my mission and my passion. It’s how I stand up to our disease and show it who’s in control. It is how I lead my life and I try to encourage others to incorporate this theme into their lives. These five words are a constant reminder...

Challenge Accepted

When diagnosed with polycystic kidney disease (PKD), facing and overcoming challenges are part of the disease. This month, the PKD Foundation is hosting a month-long challenge. One that if accepted, will help others and ourselves. Are you up for the 31 Days of PKD...

Hello Hope

I was standing with my back toward the wall at Starbucks in the Sacramento International Airport, waiting for my tall, iced, green tea unsweetened with two Splenda Sweeteners. I was wearing a mask to protect myself from germs, and a sweatshirt I had created when I...