Home sweet home

“When one door closes, another opens.” This saying has felt very fitting for Noah and me recently. The door that closed was the townhouse that we rented for six-and-a-half years, and the one that opened was the beautiful door to our first home. On Oct. 29, after...

No time for sadness

Noah and I went back to the very spot we got married in Yosemite National Park to mark our 5-year wedding anniversary. When taking trips, I constantly hope that my health will cooperate and I won’t have any medical “hiccups” that will alter our plans. I’m sure other...

Thankful Series: Valen Keefer

This is part of a special series for the month of November, where we share with you what some of us in the PKD community are thankful for this year. “My mom never told me that she loved me.” My heart sank when my 93-year-old grandmother shared this in a recent phone...

Dr. Checklist

It is nice to have wish lists in life, but when it comes to our doctors it is important to get not only what we wish for, but also what we need. Therefore, I think it is important for us to have a doctor checklist. I’ve been seeing doctors since I was five years old,...

Listen to your body

In life, we are often encouraged to follow our heart and listen to our gut. It simply means to trust our intuition. I believe this is a big component of caring for ourselves and making wise health decisions. After living with medical issues for so long, we become very...

Balancing stress

My neurologist recently informed me that the common triggers for seizures are low magnesium, lack of sleep and stress. At my last appointment, my doctor asked if I felt stressed. I chuckled inside because when you are a patient, especially with multiple health issues,...