Published October 11, 2022 | Every year, PKD Awareness Day is celebrated through special ceremonies and activities to educate others about PKD and advocate for the PKD Community. With a recent resolution passing in the Senate, this day is now officially designated as National Polycystic Kidney Disease Awareness Day.
National PKD Awareness Day
Thanks to efforts from long time champions for the PKD community, Senators Roy Blunt (R-MO) and Ben Cardin (D-MD), the Senate recently passed a resolution designating September 4, 2022, as “National Polycystic Kidney Disease Awareness Day.”
The resolution highlights the severity of PKD symptoms, PKD’s impact on generations of families and communities, and the importance of finding a cure for the genetic disease. Congressional recognition of PKD Awareness Day will help foster the public’s understanding of PKD and drive research funding to improve treatment and care. You can read the full resolution here.
“Whereas designating September 4, 2022, as ‘National Polycystic Kidney Disease Awareness Day’ will raise public awareness and understanding of polycystic kidney disease, one of the most prevalent genetic kidney disorders.”
We applaud Senator Blunt and Cardin for their staunch support and leadership on behalf of the PKD community. And we thank the U.S. Senate for recognizing that the PKD community deserves a better quality of life.
Getting Involved Beyond PKD Awareness Day
Everyone can be a PKD advocate. Beyond National Polycystic Kidney Disease Awareness Day, we encourage PKD advocates to continue engaging federal lawmakers. Supporting legislation that will advance PKD research and expand awareness opportunities is vital. Together, advocates and elected officials can bring us closer to our goal of ending PKD. To learn more about PKD advocacy, visit pkdcure.org/advocacy/. You can also register to receive the Foundation’s Advocacy Alerts to be notified how you can raise your voice to effect change.
Thankfully it’s finally getting the recognition and bringing awareness
Now the Senate is more of PKD we should all be pushing to get them to pass a law that would require food manufactures to put Potassium (most do this now) and Phosphorus amounts in MG’s per serving on their Nutrition panels. Those of us who are on dialysis need to limit our Potassium and Phosphorus daily intake and it is VERY difficult to find Phosphorus levels of many foods. I have written to a number food companies and they have sent me Phosphorus levels in their food and ,for the most part, they are able to provide me information so I don’t believe it would be a big problem.
I have written to both of my Senators requesting the above but so far have gotten no response.