There are things we can try to plan for in life, both as regular folks and as PKD patients. These can range from saving money to purchase a home, to preparing for dialysis and transplantation. Then there are moments that just happen; the times that are out of our control. We can plan all we want, but setbacks become a reality, like cyst bleeds and episodes of debilitating pain. Setbacks are difficult because they are unwanted, unexpected and difficult to prepare for.
Last week, I was sitting at my desk working on a project. I had my day planned with what I wanted to accomplish. Then, out of the blue, I had an aura that I was going to have a seizure. I instantly leaned back in my chair to brace myself in case the situation worsened. Fortunately, it did not. However, I endured the ramifications of this setback for the rest of the day.
My world instantly shrunk. Prior to this, I had the mindset that I could conquer just about anything. Once this setback occurred, everything on my to-do list vanished and I had laser focus on the incident. It scared me and the seizure aura caused my head to be completely foggy for the rest of the day. This may have been my body forcing me to have a day of rest.
Setbacks can force us to do things that we don’t want to. To deal with situations we would rather not. The important thing is how we bounce back from them. I listened to my body last week and rested for the day. However, I did not allow it to have a negative impact on the following day or week.
Let’s learn from our setbacks, embrace them, endure them with grace and know that no matter how long they may last, we have the strength to overcome them.
“My body is the ultimate expression of myself. I train and learn more about it – more about me – daily.” -Marie-Agnes Gillot
What have you learned from your PKD setbacks and how have you overcome them?