Advocate raises her voice on Rare Disease Day
...on. Every time someone asks me about ARPKD, these are the words I share. Elizabeth with friends and family at her local Walk for PKD. It wasn’t until later in...
...on. Every time someone asks me about ARPKD, these are the words I share. Elizabeth with friends and family at her local Walk for PKD. It wasn’t until later in...
...matter how PKD affects you. To show this, we asked our Marketing Specialist, Tierra Hogan, a non-patient, and our San Antonio Walk Coordinator, Patti O’Grady Ruffin, a patient with a...
...chapter no matter where you live; there are no set boundaries. When we attended our first Walk for PKD, along with several members of our family and friends, it was...
...Coordinator here in Memphis for 19 years. I can recall hosting our very first Walk for PKD and the excitement of attending our conferences throughout my 20-year journey. When I...
...sense of thankfulness and gratitude within the PKD community. Walk Coordinator Michelle Hoffmann shares what she’s thankful for this year. Kyle (left) with her mom, Michelle, and dad, Chris,...