National Donor Day: My Kidney Donation Story Pt. 1
...was participating in the annual Walk for PKD. I liked the focus of the organization and cared for my friend, so my husband and I donated. PKDF: How did...
Fundraising for PKD: Singing for a Cause
...a Walk for PKD, it still does. Whether it’s reasonable or not, I end up feeling a little angry that my disability makes it difficult for me to take part...
Managing PKD and Fatigue
...is hard. Even eating a small meal makes it hard to sit, so I need to walk or lay down. Walking can be exhausting at the end of the day,...
Celebrating Sara Kelly
I never asked; she volunteered. One test; one match. And just like that, May 21, 2019 Sara Kelly selflessly and lovingly donated one of her healthy kidneys to me. My...
Inaugural ACN Awards Ceremony
BE Published on December 21, 2021 | Recently, we hosted our inaugural Advocacy Champions Network (ACN) Awards Ceremony. Together, we honored and celebrated PKD advocates who’ve dedicated significant time to...
