Register for PKDF Virtual Advocacy Day 2022

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Published on March 22, 2022 | The PKD Foundation is excited to announce that registration is now open for PKDF Virtual Advocacy Day 2022 taking place on Wednesday, April 27! As the only organization in the U.S. solely dedicated to finding treatments and a cure for polycystic kidney disease (PKD), we consistently engage Congress to ensure that they are aware of the needs of the PKD community, with the goal of expanding federal funding opportunities and furthering legislation that will benefit PKD patients nationwide.

 

PKDF Virtual Advocacy Day 2022

No prior advocacy experience is necessary to participate in PKDF Virtual Advocacy Day! We invite any interested member of the PKD community to join us for this free, virtual event. PKD patients, caregivers, family members, and researchers from across the country will meet with the federal lawmakers and/or their staff urging them to:

  • Maintain and increase federal investments in PKD research, including through the Department of Defense’s Peer Review Medical Research Program (CDMRP) under the Congressionally Directed Medical Research Program (PRMRP)
  • Support passage of the Living Donor Protection Act (LDPA) to incentivize living organ donation by ensuring that those who choose to give the gift of life are taken care of
  • Elevate and address the consequences of racial disparities in kidney disease diagnosis, treatment, and access to transplantation, particularly for PKD

Register to attend the PKDF Virtual Advocacy Day 2022 today by following this link.

 

After You Register

After registering, the Foundation will coordinate with your congressional offices to schedule meetings between 9 a.m. ET and 5 p.m. ET on the day of the event. All meetings will be conducted virtually from the comfort of your own home.

The Foundation will host a training webinar on Thursday, April 14 to provide an overview of policies and proposals that you will discuss during your meetings, answer any questions regarding event day logistics, and provide the materials you will need to advocate on behalf of the PKD community.

If you’re interested in receiving advocacy updates about PKDF Virtual Advocacy Day and other PKD Foundation policy priorities, we invite you to subscribe to receive the Foundation’s Advocacy Alerts.

We ask that interested community members register to attend before April 18. This ensures that we can reach out to congressional offices to schedule meetings in a timely manner. If you have any questions regarding PKDF Virtual Advocacy Day or the Foundation’s advocacy priorities, please contact Patrick Meade at patrick.meade@curastrategies.com.

 

The PKD Foundation Virtual Advocacy Day 2022 is made possible by a grant from Otsuka America Pharmaceutical, Inc.

1 Comment

  1. Jon Underwood

    I’m 3 months post transplant and doing great! I’m only 42 and I look forward to further progress and advancements for the sake of my children.

    Reply

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