by PKD Foundation Staff | May 29, 2019 | ADPKD, ARPKD, Education
On May 3–5, parents of children with ARPKD and ADPKD gathered in Chicago, Illinois, for the PKD in Children conference. The event is a destination for parents to receive essential information on managing a child’s health when they live with PKD. What did attendees...
by admin | Apr 9, 2019 | Awareness, Walk for PKD
My name is Lindsay Roper, I grew up in northern California and met my husband Alan while we were going to college in Utah. We married and moved to Orem, UT, where we live with our daughters Sadie (2 ½ years) and Lacey (3 months). As a mother of a child with a rare...
by PKD Foundation Staff | Feb 4, 2019 | Chapters
Our nationwide Chapters are a wonderful way to connect with your local PKD community! New York City Chapter Co-Coordinators Sarah Giller and Meg Munits know this best, and were excited to share how getting involved impacted their PKD journeys: PKDF: Tell us a little...
by PKD Foundation Staff | Aug 17, 2018 | ARPKD, Education
We’re excited to feature our new ARPKD Patient Handbook as a resource for both parents of children with ARPKD and older ARPKD patients who are interested in learning specific information about their disease. We recently reached out to Michele Karl, ARPKD parent and...
by admin | Aug 10, 2018 | Voices of PKD
After being placed on the waitlist, receiving the call for a kidney transplant is a happy occasion for many PKD patients. The chance that PKD, with its genetic nature, might not end with a transplant can lead a family down the path all over again. Join guest blogger...
