by PKD Foundation Staff | Aug 15, 2018 | Chapters
My name is Erin Burden and I live in Metro Atlanta with my husband, Christopher, and our three children. We first learned of PKD when my oldest daughter’s ultrasound revealed some kidney abnormalities in utero. Since she is a fraternal twin, I was having scans...
by admin | Aug 10, 2018 | Voices of PKD
After being placed on the waitlist, receiving the call for a kidney transplant is a happy occasion for many PKD patients. The chance that PKD, with its genetic nature, might not end with a transplant can lead a family down the path all over again. Join guest blogger...
by PKD Foundation Staff | Aug 3, 2018 | Education, PKD Connect
If you, a family member or friend are impacted by PKD, sometimes you need advice, encouragement or a shoulder to lean on from someone who knows firsthand what you’re going through. Enter our PKD Connect Peer Mentor Program. This new program, part of our PKD Connect...
by PKD Foundation Staff | Jul 26, 2018 | PKD Will Not Beat Me
Sometimes the littlest thing at an unexpected time can trigger emotions that have been building up for a while. For me, it was a hospital food tray. On Dec. 2, 2017, I woke up severely ill with a high fever. This was the fourth time I had sepsis in the past year. Noah...
by admin | May 1, 2018 | ADPKD, Advocacy
We reached out to Honorable Karen Thurman, a former member of the U. S. House of Representatives, to hear her journey on dealing with PKD in her family. Karen also shares her thoughts on the news of the first ADPKD treatment and how tolvaptan will impact the PKD...
