Board of Directors

Our voluntary Board of Directors governs the PKD Foundation. Directors represent a variety of professional backgrounds. Each Director serves a maximum of two three-year terms. The Board of Directors meets four times a year, either in person or via teleconference. Members of the Board of Directors are assigned to committees that meet by teleconference at various times throughout the year.

Elected Officers

Navin Manglani

Board chair
Executive Committee Chair

Navin Manglani is a Professor of Technology at NYU Stern and runs a company in the venture capital space. Previously, he worked as a data consultant with a number of companies including Meta (Facebook), NBC, and Dell. Navin has also served on several non-profit boards in a leadership capacity prior to joining the PKD Foundation Board of Directors. Navin holds a BA in Economics from Yale University (summa cum laude) and an MBA from Columbia Business School where he was inducted into the Beta Gamma Sigma honors society.  


 Navin is a PKD patient and PKD affects multiple of his extended family members. After a successful transplant, Navin’s uncle, to whom Navin was very close, died of a brain aneurysm (complication of PKD) at the age of 78.


Navin is a native New Yorker and enjoys taking advantage of the unique dining experiences and theater his home city has to offer.  Navin also enjoys playing the cello, piano and saxophone. 

Christopher Wess

VICE chair

Chris Wess is currently a finance leader at Organon & Co. He has 20 years of additional experience at Merck and has had responsibilities supporting strategic initiatives, mergers and acquisitions, capital investment, and corporate planning & reporting. Before moving to the pharmaceutical industry, Chris worked in finance and analytics in the media industry for both Dow Jones and Nielsen Media Research. He is a Chartered Financial Analyst with an MBA from the NYU Stern School of Business and a BA in English from McDaniel College. Chris is a PKD patient and has been involved with the Foundation for over 10 years. In his spare time Chris enjoys hiking, sailing, and playing the guitar. He lives in Skillman, NJ with his wife Alyson and daughters, Ellie and Georgia.

Stu Caplan

Financial Oversight and Investment Committee Chair

Stu Caplan is currently Chief Investment Officer of Apex Financial Advisors and a Partner at AFA Real Estate Partners. He is seasoned investment professional with experience in multiple asset classes including equity, fixed income, hedge funds, and real estate. Previously, he worked for Brickell Capital Management, a multi-family investment office in Miami, Fl, where he managed several portfolios of varied instruments. He began his career with his family’s retail art supply chain based in Silver Spring, Md. Stu received his MBA from the Robert H. Smith School of Business at the University of Maryland and his BSBA in Marketing and Entrepreneurship, cum laude, from the University of Arizona. He has PKD which he inherited from his mother who received a transplant in 2018 and as a family, they’ve been involved with the PKD Foundation for over 20 years.

Amanda Yen


Amanda Yen is a partner at the Nevada law firm of McDonald Carano. She focuses her practice on Commercial & Complex Litigation and Appellate Law. Amanda handles cases in federal and state courts involving contract disputes, tortious interference, landlord/tenant, fraud and misrepresentation, quiet title and matters involving injunctive relief. Her appellate law practice focuses on representing clients before the Ninth Circuit Court of Appeals, Nevada Supreme Court and Nevada Court of Appeals. Amanda has a successful motion practice and authored the Motions Practice Chapter of the 2021 edition of the Nevada Appellate Practice Manual. Before joining McDonald Carano, Amanda was a judicial law clerk for the United States District Court. In addition to serving on the Board of Directors of the Polycystic Kidney Disease Foundation, Amanda is a member of the Nevada Commission on Ethics and the Sierra Club. Since 2015, she has also held numerous leadership positions at Meritas, a global network of 185 independent law firms that helps clients do business around the world.

Robert Roth

Immediate Past chair

Robert Roth is the retired Executive Vice President and Chief Financial Officer for Home Box Office Inc. (HBO), a wholly owned subsidiary of WarnerMedia. He had been at the company for 33 years, the last 15 as CFO, responsible for the financial planning, reporting, and control activities for all divisions of the network. Rob comes from a family of PKD patients including his grandmother, mother, and brother and as such, has been a strong advocate for PKD research and organ donation awareness. Rob received a kidney transplant in 2014 from his longtime college friend for which he will forever be grateful. He and his wife Linda reside in Weston, CT, and have two adult children, Jaclyn and Benjamin. Rob has an Economics degree from Stony Brook University and an MBA degree from the University of Michigan at Ann Arbor and is a Certified Public Accountant in the State of New York.


Katherine Dell, M.D.

Dr. Katherine Dell is Professor of Pediatrics at Case Western Reserve University and Vice Chair of Research at Cleveland Clinic Children’s. She graduated from Harvard Medical School and completed her Pediatrics and Pediatric Nephrology training at Children’s Hospital of Philadelphia (CHOP).   She has been a PKD researcher and practicing pediatric nephrologist, treating children with ARPKD and ADPKD, for over 20 years. She is a past member of the PKD Foundation Scientific Advisory (SAC) and was the 2016 recipient of the Dr. Vincent Gattone Research Award. Her major research focus is defining factors that contribute to ARPKD kidney and liver disease progression and identifying and evaluating magnetic resonance imaging (MRI) markers of disease progression, for which she has received both NIH and PKD Foundation funding.   She is an experienced clinical researcher, having participated in numerous clinical trials and studies of pediatric chronic kidney disease and hypertension. Her ultimate goal is to be able to bring novel treatments to clinical trials in children with PKD. She and her husband live in Shaker Heights, OH and have two children.

Michael Haggard

Compassionate, empathetic and a fervent advocate for victims of crime, Michael Haggard has dedicated his career to the pursuit of justice on behalf of his clients inside and outside of the courtroom. Haggard has secured unprecedented awards for his clients, and as an activist, continuously lobbies for permanent solutions and change through local, statewide and federal legislation. Devoted to his clients, Haggard has received numerous awards for his time and dedication earning him recognition as one of the most highly regarded personal injury attorneys in the country. Professional achievements aside, Haggard is also fiercely dedicated to a myriad of worthy causes. Closest to his heart, however, Haggard sits on the National Board of the Polycystic Kidney Foundation. Passed genetically, this disease has affected many members of his family, as well as Haggard himself. He received a kidney transplant from his brother-in-law in 2016, and now dedicates his time and talents to raising awareness of living donor transplants. 

Julie Marshall


Julie lives in Connecticut where she works as the Associate Vice President of Treatment for a company that provides in home ABA services.  She received her Master’s of Education from Cambridge College where she is currently pursuing her PhD in Applied Behavior Analysis.  When Julie was pregnant with their second son, she and her husband received news that he had signs of ARPKD. This was the first time they had heard of PKD and began educating themselves on the condition. After Porter passed away from complications related to ARPKD when he was a newborn they began spreading awareness and fundraising for the PKD foundation.  Julie and her husband went on the have a third child who was also diagnosed with ARPKD.  Jameson will be turning 3 and so far has no complications related to his ARPKD diagnosis. Their oldest child does not have PKD.  Julie and her family enjoy traveling as often as they can. Julie is a distance runner and keeps busy training for longer distances between work, school, and family time. 

Meyeon Park

Meyeon Park is a nephrologist and clinical researcher at University of California, San Francisco. She is the founder and director of the UCSF Polycystic Kidney Disease Center of Excellence. Meyeon graduated from the University of Pennsylvania Perelman School of Medicine and completed residency at Yale-New Haven Hospital, where she decided to pursue a career in nephrology and research. Her research centers on metabolic and cardiovascular outcomes in individuals affected by kidney disease, focusing on individuals with polycystic kidney disease. As the primary nephrologist for many individuals with PKD, she has first-hand experience with the many ways PKD affects the lives of her patients and their families and feels privileged to be part of the PKD community. The mission of her work and that of the PKD Center of Excellence at UCSF is to advance care for patients with PKD, both now and in the future.

Alix Piccirilli

Alix Piccirilli is a Change Management Specialist for the World Bank Group. She spent the last 20 years in the US private sector in the information technology and banking industries in different organizational change ,anagement, project management, and learning & development roles.

Alix’s oldest son was diagnosed with ARPKD in 2017 and since then has become a relentless advocate for PKD families. She volunteers in multiple capacities for the PKD Foundation including the ARPKD Task Force, Education Advisory Panel, Advocacy Champions Network, PKD Walks, and is an active member of the PKD in Children Parents’ Chapter Facebook Group.

Currently living in Northern Virginia, she is a native of New York, a military spouse, and mom of 2 boys and a mini dachshund. 

Debora Plunkett

Debora Plunkett is a cybersecurity leader with over 30 years of experience. A former Director of Information Assurance at the National Security Agency, she is Principal of Plunkett Associates LLC, a consulting business. Debora served on the National Security Council at the White House in the Administrations of Presidents Clinton and George W. Bush where she developed national cybersecurity policies and programs. She earned an undergraduate degree from Towson University, an MBA from Johns Hopkins University, and a Master of Science in National Security Strategy from the National War College.

In addition to serving on the PKD Foundation Board, Debora serves on the boards of CACI International, Nationwide Insurance, Mercury Systems and BlueVoyant. She is a founding member and past chairman of the board of Defending Digital Campaigns, a non-profit entity focused on providing free or low-cost cybersecurity services to federal election campaigns. PKD has impacted Debora’s family for generations, and she is a recent kidney and liver transplant recipient due to the disease. She has volunteered for the PKD Foundation for several years, serving most recently on the PKD Foundation Patient Advisory Group

Shawna Webb

Shawna lives in West Virginia and is currently employed as an accountant for Triple H Enterprises, her family owned and operated business. She is a licensed Certified Public Accountant in the State of West Virginia and is a member of the West Virginia Society of CPAs. Shawna received both her Master of Accountancy (MAcc) and Bachelors of Science in Business Administration, summa cum laude, from the John Chambers College of Business and Economics at West Virginia University.

Shawna was diagnosed with autosomal recessive polycystic kidney disease and congenital hepatic fibrosis (ARPKD/CHF) over 20 years ago at the age of four. She has been involved with the PKD Foundation for the past few years and hopes to continue bringing awareness to PKD. A native West Virginian, Shawna has always been passionate about giving back to her community. In college, she worked at the WVU Foundation and lead the WVU Chapter of Global Business Brigades. In her spare time, Shawna enjoys reading, traveling, and spending time with family and friends.


Orme Lewis Jr. Phoenix, Ariz. Managing Director, Select Investments Vice Chair, Arizona Biomedical Research Commission

Page last reviewed August 2022