by PKD Foundation Staff | Nov 8, 2018 | PKD Connect, Positivity
At the PKD Foundation, we’re proud to offer support through the PKD Connect Peer Mentor Program. This program is designed to help facilitate and build a strong support system for mentees with the help of peer mentors, someone who knows firsthand what patients are...
by PKD Foundation Staff | Nov 2, 2018 | Staff Update
In late September of this year, we welcomed our new Director of Research, Elise Hoover, to the PKD Foundation staff. We reached out to Elise to hear more about her background with PKD research and what she’s looking forward to in her new role: My name is Elise Hoover...
by PKD Foundation Staff | Oct 30, 2018 | Education, Transplantation
Our recent transplantation webinar with Melissa Blevins Bein, Executive Director of Transplant Programs at UC Davis Medical Center, was a hit! Registration filled up fast, but not before Memphis Chapter Coordinator, Karyn Waxman, reserved her spot. We reached out to...
by PKD Foundation Staff | Oct 25, 2018 | ARPKD
In honor of October being Pregnancy and Infant Loss Remembrance Month, we want to recognize families who have lost loved ones to PKD. We recently reached out to Melissa Justice, a member of the PKD community, to hear her story and honor the life of her daughter: What...
by PKD Foundation Staff | Oct 22, 2018 | Chapters
My name is Jean Sommer and I am the St. Louis Chapter and Walk Coordinator. In 2001, I was diagnosed with ADPKD2. My sister and brother have it also. My sister and I have rare massive Polycystic Liver Disease (PLD). After our mom died from complications after brain...