by PKD Foundation Staff | Oct 19, 2018 | ARPKD, Voices of PKD
In honor of October being Pregnancy and Infant Loss Remembrance Month, we want to recognize families who have lost loved ones to PKD. We recently reached out to Marquila Turner, a member of the North Texas Chapter, to hear her story and honor the lives of her sons: On...
by PKD Foundation Staff | Oct 18, 2018 | Walk for PKD
It may have been a cold and rainy Saturday, but not even the weather conditions could deter the passion and commitment of our Oklahoma Walk for PKD participants! The Walk was held at beautiful Lake Hefner in Oklahoma City, with a one-mile course for walkers to enjoy....
by PKD Foundation Staff | Aug 21, 2018 | ARPKD, Walk for PKD
Kevin McDonald, captain of Team Lucy D, is ready to get moving in the Detroit Walk for PKD. With the event just a few weeks away, we reached out to Kevin to learn more about his family’s experience with PKD once his daughter Lucy was diagnosed with ARPKD, how their...
by PKD Foundation Staff | Aug 17, 2018 | ARPKD, Education
We’re excited to feature our new ARPKD Patient Handbook as a resource for both parents of children with ARPKD and older ARPKD patients who are interested in learning specific information about their disease. We recently reached out to Michele Karl, ARPKD parent and...
by PKD Foundation Staff | Aug 15, 2018 | Chapters
My name is Erin Burden and I live in Metro Atlanta with my husband, Christopher, and our three children. We first learned of PKD when my oldest daughter’s ultrasound revealed some kidney abnormalities in utero. Since she is a fraternal twin, I was having scans...
