by Sydney Johnston | May 8, 2024 | Advocacy, Awareness
Published on May 8, 2024 | This spring, the PKD Foundation and local advocates brought the needs of the polycystic kidney disease (PKD) community to Capitol Hill. Through two events, these passionate advocates elevated PKD-centric policies to Congress and called for...
by Sydney Johnston | Mar 8, 2024 | Advocacy
Published March 8, 2024 | It’s that time of year again. The PKD Foundation is excited to announce that registration is now open for Virtual Advocacy Day. On Tuesday, April 9, the entire PKD community can join this free event to engage with federal lawmakers and...
by Sydney Johnston | Nov 2, 2023 | Advocacy, Transplantation
Published on November 1, 2023 | Today, Representatives Joe Wilson (R-SC-02) and Jerrold Nadler (D-NY-12) introduced the Living Organ Donor Tax Credit Act of 2023. If it passes, this legislation would provide a one-time, reimbursable tax credit of up to $5,000 to...
by Sydney Johnston | Oct 5, 2023 | Advocacy, Transplantation
Published on October 3, 2023 | On Friday, September 22, 2023, President Biden signed the Securing the U.S. Organ Procurement and Transplantation Network Act (P.L. 118-140) into law. Through this law, we’ll modernize and improve the Organ Procurement and...
by Sydney Johnston | Sep 14, 2023 | Advocacy
Published on September 14, 2023 | Aside from funding research, one of the best ways to drive change in the PKD community is through advocacy. One way you can take part in PKD advocacy is by joining the Advocacy Champions Network (ACN). Applications are now open for...
by Sydney Johnston | May 11, 2023 | Advocacy
Published on May 11, 2023 | Last month, PKD advocates from coast to coast participated in Virtual Advocacy Day 2023. Through virtual meetings, patients, friends, researchers, and PKD Foundation staff united to share our community’s needs with Congress. For those...
