by PKD Foundation Staff | May 22, 2018 | Education, Staying Healthy
Our Director of Community Engagement and PKD patient, Nicole Harr, weighs in with her experience with hypertension and best practices for managing blood pressure: “Blood pressure is a measurement of the force of the blood as it flows through the body. The pressure...
by PKD Foundation Staff | May 16, 2018 | Education
The U.S. Food and Drug Administration (FDA) has updated the requirements for the Nutrition Facts label. These changes are based on new data about what constitutes a healthy diet—something all PKD patients know about. In recent years, Americans have become more focused...
by PKD Foundation Staff | Apr 30, 2018 | Education, Q and A, Transplantation
We’re ending on a high note as Donate Life Month draws to a close: our very own Senior Director of Community Fundraising, Sue Full, has been approved as a transplant match for best friend and Director of Community Engagement, Nicole Harr! Check out the video...
by PKD Foundation Staff | Mar 13, 2018 | Education
At the PKD Foundation, we strive to give all types of patient experiences a voice in the community. Recently, an almost un-heard of story came to us from our Orlando Chapter Education Coordinator Brittnee Boyd, and we reached out her to learn more about her story: My...
by PKD Foundation Staff | Mar 9, 2018 | Education
At the PKD Foundation, we honor various and unique patient perspectives to show the broad scope of experience that PKD patients face with this disease. This includes the reality of dialysis, which can go undiscussed in our community in comparison to kidney...
by admin | Mar 17, 2016 | Education, PKD Will Not Beat Me
I was in my early 20s when I first typed “PKD” in Google’s search engine. That was 12 years ago this month. I was so excited to discover the PKD Foundation. I immediately contacted the Chapter Relations Manager and shortly thereafter created the South Central PA...
