by PKD Foundation Staff | Jun 25, 2019 | Advocacy, Q and A
This month, we sat down with Alexis Denny, Director of Governmental Affairs at the PKD Foundation (PKDF), to learn more about the approval of HR 2740 and what the bill means for PKD patients and their families. Q: What is HR 2740? Alexis: HR 2740 is a bill approved by...
by PKD Foundation Staff | Jun 11, 2019 | ADPKD, Chapters, Q and A, Transplantation
Diagnosed with PKD nearly 20 years ago, Karyn Waxman helped establish the Memphis Chapter and has acted as its coordinator for the past 19 years. Her passion lies in heightening PKD awareness through fundraising events, talking to anyone and everyone about PKD, and...
by PKD Foundation Staff | Jun 4, 2019 | ADPKD Registry, Advocacy, Awareness, Education, Q and A
Published June 4, 2019 In May we announced the upcoming ADPKD Patient Registry, a collection of individuals with Autosomal Dominant Polycystic Kidney Disease (ADPKD). This month, we sat down with Elise Hoover, Director of Research at the PKD Foundation (PKDF), to...
by PKD Foundation Staff | Apr 30, 2018 | Education, Q and A, Transplantation
We’re ending on a high note as Donate Life Month draws to a close: our very own Senior Director of Community Fundraising, Sue Full, has been approved as a transplant match for best friend and Director of Community Engagement, Nicole Harr! Check out the video...
