by PKD Foundation Staff | Sep 4, 2019 | ADPKD, ADPKD Registry, Awareness, Education, Research
Today is an exciting day! Because today — in addition to being PKD Awareness Day — marks the launch of the nation’s first dedicated ADPKD patient registry. Over the past few years, the PKD Foundation has collaborated with PKD researchers, clinicians, patients,...
by PKD Foundation Staff | Aug 22, 2019 | Q and A, Research
Researcher: Katharina Hopp, Ph.D. | University of Colorado Denver | Anschutz Medical Campus Assistant Professor, Division of Renal Diseases and Hypertension, Polycystic Kidney Disease Research Program Katharina is a 2018 research grant awardee of the Dr. Vincent H....
by PKD Foundation Staff | Aug 8, 2019 | Q and A, Research
Researcher: Whitney Besse, M.D. | Yale University PKD Foundation (PKDF): How did you first get involved in PKD research? Whitney: During my clinical Nephrology fellowship, I chose to work with research mentor Stefan Somlo who studies PKD and had an exciting cohort of...
by PKD Foundation Staff | Jun 18, 2019 | ADPKD Registry, ARPKD, Awareness, Research
Published June 18, 2019 We spoke with Lisa M Guay-Woodford, MD, Children’s National Health System, about the Autosomal Recessive Polycystic Kidney Disease Database and why it’s important to the PKD community. How many children have PKD in the United States? Who will...
by PKD Foundation Staff | Mar 19, 2019 | Research
There are some truly fascinating techniques in the research field being used to help increase our understanding of PKD. This week, our Chief Scientific Officer, Dr. David Baron, shares how the development of kidney organoids may help us get closer to new treatments:...
by PKD Foundation Staff | Mar 15, 2019 | Research
Earlier this week, I joined over 200 people from pharma, biotech, patient advocacy, regulatory agencies and patients at Patients as Partners 2019 in Philadelphia, PA. It was great to hear about how researchers and study sponsors are working to infuse the patient voice...
