Advocacy Champions
The Advocacy Champion Network (ACN) is vital to raising awareness of PKD and increasing research dollars to bring treatments and therapies to patients and to provide the best care for those who are reliant on dialysis or a kidney transplant to survive.
By joining others and sharing their experience, the ACN will help to further legislation, regulation, and federal funding opportunities to improve the lives of everyone in the PKD community.
2023 Virtual Advocacy Day
Training Call Resources - 2023
November 2022 – 2023 ACN Kick Off
2023 Advocacy Champions Kick-Off Webinar
2023 Advocacy Champions Kick-Off Webinar Slides
December 2022 – Advocacy Champion Awards
Watch the 2022 ACN Awards Webinar | View the 2022 ACN Awards Webinar
- Watch Rep. Davids’ video
- Watch Rep. Costa’s video
February 2023 – CDMRP / PRMRP
Watch the recording | View the slides
July 2023 – Augusts Recess: Engaging Lawmakers and News Outlets in the District
August 2023 – Living Donor Protection Act Deep-Dive & Legislative Update
Volunteer resources
Contact us
Sue Full
Director of Community Fundraising
suef@pkdcure.org
Nicole Harr
Director of Community Engagement
nicoleh@pkdcure.org
Danielle Rose
Community Fundraising Specialist
danieller@pkdcure.org
Ireland Christensen
Community Fundraising Coordinator
irelandc@pkdcure.org
Volunteer Hours
PKDF volunteers are making a difference in the lives of everyone impacted by PKD. One way we show volunteer impact is by capturing volunteer hours. Volunteer hours = revenue!
A unique link will be sent to you after each ACN training call you attend. Once you submit your hours, you can delete the submission link.
If you have questions about this process, please contact your PKDF staff lead or email Nicole at nicoleh@pkdcure.org.
resources
2023 Legislative Priorities
Page last updated October 2023
