PKD Connect Ambassadors
PKD Connect Ambassadors play a vital role in providing local support for PKD communities across the United States and serve as the frontline for individuals new to the PKD Foundation. In this role, volunteers provide educational opportunities and support to their local PKD community while connecting individuals to PKDF programs and services as appropriate.
Community Booth at the Walk!
Are you planning to host a Community Booth at the Walk for PKD event in your area? Please listen to this training session for a review of logistics and ideas to help you engage with walkers on walk day.
Walk for PKD – Community Engagement
Please contact me if you have any questions by emailing lavonnen@pkdcure.org or call me at 816-268-8459.
I look forward to helping you grow your local PKD community!
Lavonne
Community Meetings
A community meeting is an opportunity for local patients and families to gather in support of each other and to learn valuable information to help them manage living with PKD.
Community meetings can include activities such as:
- Review and discussion of an existing PKD Foundation patient education resource, such as a webinar recording. Check out our resource library to view all patient resources.
- Gathering to support one another, share individual experiences and share PKD Foundation resources to help manage PKD.
- Invite a local expert to present a topic that complements PKD Foundation patient education.
Are you ready to plan a community meeting? Complete our event submission form. And a member of the Community Engagement team will follow up with next steps.
Community Meetings - Social Media Templates
As you plan your community meeting, here are some resources to assist you with social media posts.
Community Meetings Save the Date
Mark your calendar! Our next community meeting has been scheduled for DATE and TIME. This is your chance to connect, share, and learn more about what’s going on in the YOUR COMMUNITY Community. We hope to see you there! Register at LINK.
Community Meetings RSVP
We are looking forward to our upcoming community meeting on DATE and TIME. Meet and connect with others in the PKD community in YOUR COMMUNITY. If you plan on attending, remember to register at LINK to secure your spot.
Community Meetings Thank You
Thank you, everyone, who attended our last meeting. Let us know if you enjoyed this or have any feedback in the comments below.
New PKD Connect Ambassador Onboarding Training Series
Are you a new PKD Connect Ambassador or do you need a refresher? If so, this is for you. Check out the training sessions below and let me know if you have any questions! Email Nicole at nicoleh@pkdcure.org.
Welcome to PKDF! – Information for PKD Foundation Volunteers
Communication Tools Training
- Communication Tools – Office 365 Recording
- Communication Tools _ Office 365 Slides
- Please submit volunteer hours for participating in this training session.
PKD Connect Ambassador Continuing Training Series
Communication Tools Training
- Communication Tools – Office 365 Recording
- Communication Tools _ Office 365 Slides
- Please submit volunteer hours for participating in this training session.
- Communication Tools – Microsoft Teams Recording
- Communication Tools – Microsoft Teams Slides
- Please submit volunteer hours for participating in this training session.
Leading a PKD Community
Please submit volunteer hours for participating in this training session.
Community Meeting Process Recording | Slides
All New! Let's Login Quick Video Series
Sometimes it’s just hard to remember how to login to all the places you need to be. Let’s Login Quick Video series can help.
- Where is my volunteer email account and how do I login?
- What is One Drive and how do I get to it?
- How do I login to Teams?
- How do I start a Teams meeting?
Need help accessing something else? Let us know!
Volunteer Hours
Community Meetings
After each Community Meeting, the PKD Connect Ambassador will receive a unique link to submit volunteer hours associated with planning that meeting.Please complete the form by clicking on the link provided and then, you can delete this link. You will receive a new link for each Community Meeting.
Miscellaneous
If you have volunteer hours that are not associated with a community meeting or activity, please use this link. Examples: posting on social media, email communications, etc.
Centers of Excellence Outreach
Did you reach out to clinics in your area about our COE program? Please use this link to submit volunteer hours for COE Outreach.
If you have questions about this process, please contact your PKDF staff lead or email Nicole at nicoleh@pkdcure.org.
Role Specific Resources
Contact us
Nicole Harr
Sr. Director of Community Engagement
nicoleh@pkdcure.org
Lavonne Nichols
Community Engagement Strategist
lavonnen@pkdcure.org
PKD Volunteer Team
Who has the best ideas for success? You, of course!
Join our new Team PKD Volunteer Team Facebook closed group page and connect with all of our communities, share your ideas, successes and receive news and information from staff. PKD Volunteer Team is for official PKD Foundation volunteers only.
resources
Event Form
Use the event form to tell us about your community meeting or event. When we receive your form, we will build a registration page and add an update to your community webpage.
PKD Connect Ambassador Handbook
Resource Guide
Are you looking for a resource to share, check out our resource guide or visit the Resource Library. Can’t find what you need, email Nicole.
Page last updated March 2024