PKD Connect Ambassadors

PKD Connect Ambassadors play a vital role in providing local support for PKD communities across the United States and serve as the frontline for individuals new to the PKD Foundation. In this role, volunteers provide educational opportunities and support to their local PKD community while connecting individuals to PKDF programs and services as appropriate. 

PKD Connect Ambassador Job Description

Community Meetings

A community meeting is an opportunity for local patients and families to gather in support of each other and to learn valuable information to help them manage living with PKD.   

Community meetings can include activities such as:    

  • Review and discussion of an existing PKD Foundation patient education resource, such as a webinar recording. Check out our resource library to view all patient resources.  
  • Gathering to support one another, share individual experiences and share PKD Foundation resources to help manage PKD.  
  • Invite a local expert to present a topic that complements PKD Foundation patient education. 

 Are you ready to plan a community meeting? Complete our event submission form. And a member of the Community Engagement team will follow up with next steps.  

New PKD Connect Ambassador Onboarding Training Series

Are you a new PKD Connect Ambassador or do you need a refresher? If so, this is for you. Check out the training sessions below and let me know if you have any questions! Email Nicole at

Welcome to PKDF! – Information for PKD Foundation Volunteers

Communication Tools Training


All New! Let's Login Quick Video Series

Sometimes it’s just hard to remember how to login to all the places you need to be. Let’s Login Quick Video series can help.

Let’s Login -Office 365 

  • Where is my volunteer email account and how do I login?

Let’s Login – One Drive 

  • What is One Drive and how do I get to it?

Let’s Login – Microsoft Teams 

  • How do I login to Teams?
  • How do I start a Teams meeting?


Need help accessing something else? Let us know!


Volunteer Hours - Process for Community Meetings

We have a new process for collecting volunteer hours. Moving forward, after each Community Meeting, the PKD Connect Ambassador will receive a unique link to submit volunteer hours associated with planning that meeting.Please complete the form by clicking on the link provided and then, you can delete this link. You will receive a new link for each Community Meeting. 

If you have questions about this process, please contact your PKDF staff lead or email Nicole at


Contact us

Sue Full
Director of Community Fundraising

Nicole Harr
Director of Community Engagement

Danielle Rose
Community Fundraising Specialist

Ireland Christensen
Community Fundraising Coordinator


PKD Volunteer Team

Who has the best ideas for success? You, of course!

Join our new Team PKD Volunteer Team Facebook closed group page and connect with all of our communities, share your ideas, successes and receive news and information from staff. PKD Volunteer Team is for official PKD Foundation volunteers only.


Event Form

Use the event form to tell us about your community meeting or event. When we receive your form, we will build a registration page and add an update to your community webpage. 

Community Meeting Tool Kits

Community Meeting Tool Kits provide PKD Connect Ambassadors with meeting topics and resources. Check out the topics available and let Nicole know if you have questions.

Do you have an idea for a meeting topic? Share your idea with Nicole!

PKD Connect Ambassador Handbook

Resource Guide

Are you looking for a resource to share, check out our resource guide or visit the Resource Library. Can’t find what you need, email Nicole.

Page last updated February 2022

English Spanish