PKD Connect Ambassadors
PKD Connect Ambassadors play a vital role in providing local support for PKD communities across the United States and serve as the frontline for individuals new to the PKD Foundation. In this role, volunteers provide educational opportunities and support to their local PKD community while connecting individuals to PKDF programs and services as appropriate.
Community Meetings
A community meeting is an opportunity for local patients and families to gather in support of each other and to learn valuable information to help them manage living with PKD.
Community meetings can include activities such as:
- Review and discussion of an existing PKD Foundation patient education resource, such as a webinar recording. Check out our resource library to view all patient resources.
- Gathering to support one another, share individual experiences and share PKD Foundation resources to help manage PKD.
- Invite a local expert to present a topic that complements PKD Foundation patient education.
Are you ready to plan a community meeting? Complete our event submission form. And a member of the Community Engagement team will follow up with next steps.
New PKD Connect Ambassador Onboarding Training Series
Are you a new PKD Connect Ambassador or do you need a refresher? If so, this is for you. Check out the training sessions below and let me know if you have any questions! Email Nicole at nicoleh@pkdcure.org.
Welcome to PKDF! – Information for PKD Foundation Volunteers
Communication Tools Training
PKD Connect Ambassador Continuing Training Series
Communication Tools Training
Leading a PKD Community
Part 1 – Community Meeting Process Recording | Slides
All New! Let's Login Quick Video Series
Sometimes it’s just hard to remember how to login to all the places you need to be. Let’s Login Quick Video series can help.
- Where is my volunteer email account and how do I login?
- What is One Drive and how do I get to it?
- How do I login to Teams?
- How do I start a Teams meeting?
Need help accessing something else? Let us know!
Volunteer Hours - Process for Community Meetings
We have a new process for collecting volunteer hours. Moving forward, after each Community Meeting, the PKD Connect Ambassador will receive a unique link to submit volunteer hours associated with planning that meeting.Please complete the form by clicking on the link provided and then, you can delete this link. You will receive a new link for each Community Meeting.
If you have questions about this process, please contact your PKDF staff lead or email Nicole at nicoleh@pkdcure.org.
Volunteer resources
Contact us
Sue Full
Director of Community Fundraising
suef@pkdcure.org
Nicole Harr
Director of Community Engagement
nicoleh@pkdcure.org
Danielle Rose
Community Fundraising Specialist
danieller@pkdcure.org
Ireland Christensen
Community Fundraising Coordinator
irelandc@pkdcure.org
PKD Volunteer Team
Who has the best ideas for success? You, of course!
Join our new Team PKD Volunteer Team Facebook closed group page and connect with all of our communities, share your ideas, successes and receive news and information from staff. PKD Volunteer Team is for official PKD Foundation volunteers only.
resources
Event Form
Use the event form to tell us about your community meeting or event. When we receive your form, we will build a registration page and add an update to your community webpage.
PKD Connect Ambassador Handbook
Resource Guide
Are you looking for a resource to share, check out our resource guide or visit the Resource Library. Can’t find what you need, email Nicole.
Page last updated February 2022