FY23 PKD Advocacy Update

Published October 27, 2022 | On June 30, the FY23 HouseLabor, Health and Human Services, and Education (LHHS) Appropriations bill passed the Appropriations Committee. The bill report language includes a $5 million increase to support the chronic kidney disease community. Additionally, it and urges the CDC to support PKD surveillance practices.

“The Committee includes an increase of $5 million to accelerate activities to increase awareness, diagnosis, and treatment of chronic kidney disease (CKD) and to fund partnerships to support community-based activities that enhance health systems’ capacity to identify, risk-stratify, and manage individuals with CKD. The Committee urges CDC to support activities addressing inherited kidney diseases, such as polycystic kidney disease (PKD), and encourages CDC to continue to discuss the availability and feasibility of any potential data sources for surveillance of PKD.”

FY23 LHHS report, pg. 78


Additionally, the appropriations bill includes the following PKD priorities:

  • Increased investment in living donation initiatives: a $1 million increase to support the National Living Donor Assistance Center
  • Support for research outlining health inequities in the prevention, diagnosis, and treatment of kidney disease among racial and ethnic minority populations
  • Support for rare kidney disease research and health equity initiatives

Flow chart of bill process for LHHS appropriations bill

FY23 PKD Advocacy Next Steps

So, what happens next? While the House LHHS Committee appropriations bill passed out of committee, there’s a ways to go. First, the bill must be voted on and approved by the entire House of Representatives. Similarly, the Senate LHHS Committee must vote and approve their own appropriations legislation. Next, it will go to the full Senate for a vote.

Once the Senate and the House pass their spending bills, they’ll negotiate the amount of funding for each program. That means the funding allotment may change. Historically, the negotiation period extends beyond the fiscal year deadline (September 30).

While the appropriations process is ongoing, this is promising news for the PKD community. The PKD Foundation applauds the Advocacy Champions Network and PKD supporters who engaged Congress in support of FY23 appropriations funding during the PKDF’s 2022 Virtual Advocacy Day in April.

Ready to become a PKD advocate?

To learn more about PKD and kidney care legislation and how you can join in the PKDF’s advocacy efforts, visit the advocacy section of our website. And by signing up for our Advocacy Alerts, you’ll know when action is needed.


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