Kidney Month Challenge: Tell someone new
For this week of National Kidney Month, our challenge to you was to tell someone new! Spreading the word is an empowering thing you can do for the community, no...
Local volunteer leader gives an inside look at PKD Foundation Chapters
Erin (left) and fellow volunteers at the 2017 Atlanta Walk for PKD My name is Erin Burden and I live in Metro Atlanta with my husband, Christopher, and our three...
PKDF Director of Government Affairs recaps an eventful Rare Disease Week
Alexis Denny, PKDF Director of Government Affairs (left) with Elise Hoover, PKDF Director of Research This past week, 450 rare disease advocates and patients descended on Washington, D.C., for Rare...
ADPKD Registry: Making enrollment a Foundation priority
The PKD Foundation prides itself on being an accessible resource for PKD patients, families and caregivers. But we also understand the need to provide practical ways for PKD patients...
Talking to Kids About PKD
Published on March 2, 2021 | As a parent, you may struggle with how and when to talk about PKD in your family. While every child and family is...