Mother Daughter Q&A
Valen and her mother, Pam, on Mother’s Day 2018. Last week, my mom, Pam, faced her fear and flew alone for the first time, from Pennsylvania to California, to be...
Working with your doctor
Working with your doctor What kind of doctor should I see? In addition to your general practitioner (also called an internist), you should also see a doctor who specializes...
PKDF Director of Government Affairs recaps an eventful Rare Disease Week
Alexis Denny, PKDF Director of Government Affairs (left) with Elise Hoover, PKDF Director of Research This past week, 450 rare disease advocates and patients descended on Washington, D.C., for Rare...
Communication within PKD families
Valen as a child, close to when she was diagnosed with PKD I look at PKD as a family disease. For those of us who are not victims of a...
Top five reasons to attend the 2018 PKD Connect Conference
Summer is coming up faster than you know, and along with it, the 2018 PKD Connect Conference! Formerly known as the PKD National Convention, PKD Connect Conference is our biennial...