Alexis Denny, PKDF Director of Government Affairs (left) with Elise Hoover, PKDF Director of Research This past week, 450 rare disease advocates and patients descended on Washington, D.C., for Rare...
Judy (center) with her siblings: Mike, John, Janice and Mary To know me is to know my family and PKD: how PKD defines my family, but does not hold us...
Read more about the PKD Foundation presenting the Lillian Jean Kaplan International Prize for Advancement to two esteemed researchers in Melbourne, Australia.
If you follow us on social media (Facebook, Twitter, Instagram and LinkedIn), we hope you’ve already heard about our exciting new partnership with Discovery Communications / Discovery en Español. Knowing...
Published May 14, 2019 PKD patients are very well-informed about their disease and its consequences. As a disease impacting multiple generations or appearing unexpectedly as a spontaneous mutation, patients and...
