Dad’s steadfast support
Disclaimer: This post contains an instance of graphic detail regarding the effects of internal bleeding. Valen as a child with her Dad Noah and I have lived across the country...
New Year…New Outlook …New Day
10 …9 …8 …7 …6 …5 …4 …3 …2 …1 …HAPPY NEW YEAR!!!!!! This once-a-year 10-second countdown is filled with hope and excitement of what the New Year will bring....
What is ARPKD?
What is ARPKD? Autosomal recessive polycystic kidney disease (ARPKD) is a rare genetic disorder occurring in approximately 1 in 25,000 children. It affects boys and girls equally and can...
Thankfulness in the PKD Community
Published November 24, 2020 | It’s no secret that 2020 has been a challenging year for all of us. Despite its many ups and downs, there’s still a...
ADPKD Patient Registry Celebrates Anniversary
Published September 8, 2020 | When the PKDF launched the ADPKD Patient Registry a year ago, our goal was to build a network of ADPKD patients from whom we could...