A Look at the Past, A Glimpse of the Future
Were you recently diagnosed with PKD? Living with PKD? Have a loved one with PKD? Looking for hope and inspiration? Welcome to PKD Will Not Beat Me! My mission is...
PKD Connection
“All we are really looking for is connection, direction and meaning.” – Lucia Steele Living with PKD is a life of acceptance, fear, patience, strength, love and change. We yearn...
Pain on a Scale of One to Ten
Pain can be all consuming. It can be debilitating. Pain can make us stronger. We can be afflicted by pain on a physical level due to an illness like PKD...
Dad’s steadfast support
Disclaimer: This post contains an instance of graphic detail regarding the effects of internal bleeding. Valen as a child with her Dad Noah and I have lived across the country...
Father of a PKD patient celebrates Father’s Day by sharing his family’s story
Ed McVey and his daughter, Meredith. Hello, and Happy Father’s Day to all the dads! My name is Ed McVey and my daughter Meredith has PKD. When I was asked...