Build Your Community
Participants of the South Central PA Chapter’s Walk for PKD I think people would be surprised if they knew how many PKD patients live close to them. I spent a...
The Exceptions
When I was first diagnosed with PKD at ten years old, my nephrologist told my mom and me, “You will probably follow your same family history and not be affected...
The Gift of Life: Interview With My Donor
I love that my living kidney donor, Sally Robertson, has been a part of my life since I was in 8th grade. I will always be in awe and forever...
I’m fine
“More than 80 percent of those with chronic, invisible illnesses downplay their true feelings to make others feel more at ease.” * This statistic really hits home. Can you relate...
A letter from a PKD patient to her mom
Dear Mom, Happy Birthday! You are 61! Wow! The first word that comes to mind is ‘hallelujah!’ With living cross-country from each other—from California to Pennsylvania—for seven years now, I...