by PKD Foundation Staff | Jan 23, 2019 | Chapters
Greetings from Kim and Mike Ahrens! We are Co-Coordinators for the Detroit Chapter along with Cheryl Sherman. Our PKD journey began when Kim was diagnosed with PKD in 2005 while she served as Executive Director of Finance in Grand Rapids for Booth Newspapers/Advance...
by admin | Aug 10, 2018 | Voices of PKD
After being placed on the waitlist, receiving the call for a kidney transplant is a happy occasion for many PKD patients. The chance that PKD, with its genetic nature, might not end with a transplant can lead a family down the path all over again. Join guest blogger...
by PKD Foundation Staff | Aug 3, 2018 | Education, PKD Connect
If you, a family member or friend are impacted by PKD, sometimes you need advice, encouragement or a shoulder to lean on from someone who knows firsthand what you’re going through. Enter our PKD Connect Peer Mentor Program. This new program, part of our PKD Connect...
by admin | May 1, 2018 | ADPKD, Advocacy
We reached out to Honorable Karen Thurman, a former member of the U. S. House of Representatives, to hear her journey on dealing with PKD in her family. Karen also shares her thoughts on the news of the first ADPKD treatment and how tolvaptan will impact the PKD...
by PKD Foundation Staff | Apr 24, 2018 | ADPKD, PKD Foundation News, Research
Today is a historic day in providing hope to patients with polycystic kidney disease. We are excited to announce that the U.S. Food and Drug Administration (FDA) granted approval of JYNARQUE™ (tolvaptan) to be the first treatment in the United States for adult...