by PKD Foundation Staff | Jan 16, 2020 | Awareness, Q and A, Research
Published January 16, 2020 Kai He, Ph.D. | Mayo Clinic PKD Foundation (PKDF): How did you first get involved in PKD research? Kai: After my Ph.D. training in molecular cell biology and biochemistry, I started my postdoctoral research at Mayo Clinic studying the...
by PKD Foundation Staff | May 2, 2019 | Awareness, Education
If you follow us on social media (Facebook, Twitter, Instagram and LinkedIn), we hope you’ve already heard about our exciting new partnership with Discovery Communications / Discovery en Español. Knowing how important it is to share information about polycystic kidney...
by admin | Apr 9, 2019 | Awareness, Walk for PKD
My name is Lindsay Roper, I grew up in northern California and met my husband Alan while we were going to college in Utah. We married and moved to Orem, UT, where we live with our daughters Sadie (2 ½ years) and Lacey (3 months). As a mother of a child with a rare...
by PKD Foundation Staff | Mar 22, 2019 | Awareness, Education
For this week of National Kidney Month, our challenge to you was to tell someone new! Spreading the word is an empowering thing you can do for the community, no matter how PKD affects you. To show this, we asked our Marketing Specialist, Tierra Hogan, a non-patient,...
by PKD Foundation Staff | Mar 4, 2019 | Advocacy, Awareness, Education
This past week, 450 rare disease advocates and patients descended on Washington, D.C., for Rare Disease Week, and I was glad to be amongst them. It was a packed agenda with four days of activities and awareness opportunities and I’d like to share the highlights:...
