by PKD Foundation Staff | Mar 26, 2019 | Voices of PKD
My name is Kate Callahan and I’m a 21-year-old college student from the San Francisco Bay Area. My journey with PKD begins when I was seven years old. My father became increasingly ill with PKD and was told that he needed to go on kidney dialysis while waiting for a...
by PKD Foundation Staff | Mar 4, 2019 | Advocacy, Awareness, Education
This past week, 450 rare disease advocates and patients descended on Washington, D.C., for Rare Disease Week, and I was glad to be amongst them. It was a packed agenda with four days of activities and awareness opportunities and I’d like to share the highlights:...
by PKD Foundation Staff | Feb 14, 2019 | Awareness, Transplantation
We’re spreading double the love today for National Donor Day! In the US alone, more than 120,000 people are waiting for a life-saving organ donation. We recently reached out to New England Chapter Co-Coordinator Judy Ehrlich to share how her donor has impacted...
by PKD Foundation Staff | Jan 4, 2019 | DIY for PKD, Run for PKD
Our Fundraise Your Way program is one of the best ways you can help create a future without PKD. When you turn your hobbies and passions into creative fundraisers, 100% of the money you raise goes directly to fund PKD research. You can help give hope, like our friend...
by PKD Foundation Staff | Aug 21, 2018 | ARPKD, Walk for PKD
Kevin McDonald, captain of Team Lucy D, is ready to get moving in the Detroit Walk for PKD. With the event just a few weeks away, we reached out to Kevin to learn more about his family’s experience with PKD once his daughter Lucy was diagnosed with ARPKD, how their...
