by PKD Foundation Staff | Mar 25, 2019 | Advocacy
As Kidney Month starts winding down, keep up the momentum by raising your voice for PKD! Both the House and Senate will leave Washington, D.C. from April 15-26, 2019, and many will be back in their hometowns. Except for the Passover/Easter weekend (April 19-22), many...
by PKD Foundation Staff | Mar 22, 2019 | Awareness, Education
For this week of National Kidney Month, our challenge to you was to tell someone new! Spreading the word is an empowering thing you can do for the community, no matter how PKD affects you. To show this, we asked our Marketing Specialist, Tierra Hogan, a non-patient,...
by PKD Foundation Staff | Mar 19, 2019 | Research
There are some truly fascinating techniques in the research field being used to help increase our understanding of PKD. This week, our Chief Scientific Officer, Dr. David Baron, shares how the development of kidney organoids may help us get closer to new treatments:...
by PKD Foundation Staff | Mar 4, 2019 | Advocacy, Awareness, Education
This past week, 450 rare disease advocates and patients descended on Washington, D.C., for Rare Disease Week, and I was glad to be amongst them. It was a packed agenda with four days of activities and awareness opportunities and I’d like to share the highlights:...
by PKD Foundation Staff | Feb 14, 2019 | Awareness, Transplantation
We’re spreading double the love today for National Donor Day! In the US alone, more than 120,000 people are waiting for a life-saving organ donation. We recently reached out to New England Chapter Co-Coordinator Judy Ehrlich to share how her donor has impacted...
