by PKD Foundation Staff | Feb 4, 2019 | Chapters
Our nationwide Chapters are a wonderful way to connect with your local PKD community! New York City Chapter Co-Coordinators Sarah Giller and Meg Munits know this best, and were excited to share how getting involved impacted their PKD journeys: PKDF: Tell us a little...
by PKD Foundation Staff | Aug 15, 2018 | Chapters
My name is Erin Burden and I live in Metro Atlanta with my husband, Christopher, and our three children. We first learned of PKD when my oldest daughter’s ultrasound revealed some kidney abnormalities in utero. Since she is a fraternal twin, I was having scans...
by admin | May 1, 2018 | ADPKD, Advocacy
We reached out to Honorable Karen Thurman, a former member of the U. S. House of Representatives, to hear her journey on dealing with PKD in her family. Karen also shares her thoughts on the news of the first ADPKD treatment and how tolvaptan will impact the PKD...
by PKD Foundation Staff | Apr 24, 2018 | ADPKD, PKD Foundation News, Research
Today is a historic day in providing hope to patients with polycystic kidney disease. We are excited to announce that the U.S. Food and Drug Administration (FDA) granted approval of JYNARQUE™ (tolvaptan) to be the first treatment in the United States for adult...