PKD Connect Ambassadors

A community meeting is an opportunity for local patients and families to gather in support of each other and to learn valuable information to help them manage living with PKD.   

Community meetings can include activities such as:    

• Review and discussion of an existing PKD Foundation patient education resource, such as a webinar recording. Check out our resource library to view all patient resources.  
• Gathering to support one another, share individual experiences and share PKD Foundation resources to help manage PKD.  
• Invite a local expert to present a topic that complements PKD Foundation patient education. 

 Are you ready to plan a community meeting? Complete our event submission form. And a member of the Community Engagement team will follow up with next steps.  

As you plan your community meeting, here are some resources to assist you with social media posts.

Community Meetings Save the Date 

Mark your calendar! Our next community meeting has been scheduled for DATE and TIME. This is your chance to connect, share, and learn more about what’s going on in the YOUR COMMUNITY Community. We hope to see you there! Register at LINK. 

Community Meetings RSVP 

We are looking forward to our upcoming community meeting on DATE and TIME. Meet and connect with others in the PKD community in YOUR COMMUNITY. If you plan on attending, remember to register at LINK to secure your spot. 

Community Meetings Thank You 

Thank you, everyone, who attended our last meeting. Let us know if you enjoyed this or have any feedback in the comments below. 

Are you a new PKD Connect Ambassador or do you need a refresher? If so, this is for you. Check out the training sessions below and let me know if you have any questions! Email Nicole at nicoleh@pkdcure.org.

Welcome to PKDF! – Information for PKD Foundation Volunteers

• Welcome to PKDF! (slides)
• Please submit volunteer hours for participating in this training session

Communication Tools Training

• Communication Tools – Office 365 Recording
• Communication Tools _ Office 365 Slides
• Please submit volunteer hours for participating in this training session.

Communication Tools Training

• Communication Tools – Office 365 Recording
• Communication Tools _ Office 365 Slides
• Please submit volunteer hours for participating in this training session.

• Communication Tools – Microsoft Teams Recording
• Communication Tools – Microsoft Teams Slides
• Please submit volunteer hours for participating in this training session.

Leading a PKD Community

Let’s Get Started | Slides

Please submit volunteer hours for participating in this training session.

Community Meeting Process Recording | Slides

Sometimes it’s just hard to remember how to login to all the places you need to be. Let’s Login Quick Video series can help.

Let’s Login -Office 365 

• Where is my volunteer email account and how do I login?

Let’s Login – One Drive 

• What is One Drive and how do I get to it?

Let’s Login – Microsoft Teams 

• How do I login to Teams?
• How do I start a Teams meeting?

Need help accessing something else? Let us know!

Community Meetings

 After each Community Meeting, the PKD Connect Ambassador will receive a unique link to submit volunteer hours associated with planning that meeting. Please complete the form by clicking on the link provided. You will receive a reminder after each Community Meeting. 

If you have questions about this process, please contact your PKDF staff lead or email Nicole at nicoleh@pkdcure.org.