by PKD Foundation Staff | Aug 13, 2019 | Advocacy, Awareness, Education
As lawmakers get ready to return from the August recess, PKD Foundation sat down with Alexis Denny, Director of Government Affairs, to learn more about the intricacies of the general Federal Budget process and how it pertains to the PKD community and the PKD...
by PKD Foundation Staff | Aug 8, 2019 | Q and A, Research
Researcher: Whitney Besse, M.D. | Yale University PKD Foundation (PKDF): How did you first get involved in PKD research? Whitney: During my clinical Nephrology fellowship, I chose to work with research mentor Stefan Somlo who studies PKD and had an exciting cohort of...
by PKD Foundation Staff | Aug 7, 2019 | Awareness, Q and A, Walk for PKD
Walk for PKD — Twin Cities The first fall Walk for PKD event is just around the corner. Throughout the country, participants are breaking in their walking shoes and beginning this year’s fundraising efforts. In preparation, we caught up with Sue Truhlar, a long-time,...
by PKD Foundation Staff | Aug 2, 2019 | Advocacy, Awareness, Education
As the only organization in the U.S. solely dedicated to finding new treatments and a cure for PKD, we understand how important it is to increase awareness of the disease and showcase its impact on patients, their families, and caregivers. Sharing the PKD message is...
by PKD Foundation Staff | Jul 23, 2019 | ADPKD Registry, Advocacy, Awareness, Education
The PKD Foundation prides itself on being an accessible resource for PKD patients, families and caregivers. But we also understand the need to provide practical ways for PKD patients to play a proactive role for themselves and future generations. The upcoming ADPKD...
