by Sydney Johnston | Jul 8, 2021 | Awareness, DIY for PKD
Published July 08, 2021 | When you receive a diagnosis, it’s easy to focus on the negatives. Instead of being pessimistic, Rob Herman is focused on creating change for PKD. Today, he details his experience with PKD, how he spreads PKD awareness, and his creative...
by Sydney Johnston | Jun 29, 2021 | Research
Published on June 29, 2021 | On June 1, the STAGED-PKD study was halted due to an inability to meet futility criteria. The study was looking at an investigational drug called venglustat to treat ADPKD. Over 500 patients signed up to participate. What does it mean to...
by Sydney Johnston | Jun 22, 2021 | Research
Published on June 22, 2021 Xiangqin Cui, Ph.D., Emory University How did you first get involved in PKD research? Xiangqin: When I was a postdoc in Dr. Gary Churchill’s lab at the Jackson Laboratory, Dr. Churchill had collaborations with Dr. Lisa Guay-Woodford...
by Sydney Johnston | Jun 15, 2021 | Advocacy
Published on June 15, 2021 | We’ve seen firsthand the power of collaboration to enact meaningful change in health care. By pulling together institutions and advocates, we can transform policy for kidney patients and living donors. During the last Congress, the PKD...
by Sydney Johnston | Jun 10, 2021 | ADPKD Registry, Research
Published on June 8, 2021 | At the PKD Foundation, creating a world free of PKD is our ultimate goal. In order to make that goal a reality, more PKD research is needed. Over the past 40 years, we’ve evolved from not only a funder, but a doer of research....
