by Sydney Johnston | May 11, 2023 | Advocacy
Published on May 11, 2023 | Last month, PKD advocates from coast to coast participated in Virtual Advocacy Day 2023. Through virtual meetings, patients, friends, researchers, and PKD Foundation staff united to share our community’s needs with Congress. For those...
by Sydney Johnston | Mar 30, 2023 | Advocacy
Published on March 30, 2023 | In order to change the future of PKD, it takes more than research. Advocacy plays an important part, too. Our Advocacy Champions Network connects PKD advocates to their local legislators, helping further PKD-centered legislation. In...
by Sydney Johnston | Mar 9, 2023 | Awareness, Staying Healthy
Published on March 9, 2023 | Today is World Kidney Day. Each year, the World Kidney Day Joint Steering Committee selects a topic to highlight awareness of kidney health around the world. For 2023, they chose the topic, “preparing for the unexpected, supporting the...
by Sydney Johnston | Feb 21, 2023 | Advocacy
Published on February 21, 2023 | Last spring, we hosted our first Virtual Advocacy Day. This event was open to every member of the PKD community—patient, caregiver, researcher, etc. Together, they met with federal lawmakers around the country to advocate for the PKD...
by Sydney Johnston | Feb 14, 2023 | Transplantation
Published on February 14, 2023 | Since 1998, February 14 has been observed as National Donor Day. Beyond sending valentines, this day is dedicated to spreading awareness and education about organ, eye, and tissue donation. Donation an organ or tissue is one of the...
