by Sydney Johnston | Jul 7, 2022 | PKD Parents, Staying Healthy
Published on July 7, 2022 | Making sure your child consumes a healthy diet is an important task for all parents, but especially when your child has PKD. So, what can parents do to keep a healthy diet for their child with ARPKD? “With any complex medical diagnosis, we...
by Sydney Johnston | Jun 30, 2022 | Walk for PKD
Published on June 30, 2022 | Since 2000, one event has been the signature fundraising event for polycystic kidney disease: the Walk for PKD. Over the past 20 years, it’s raised more than $34 million for PKD research. Although the COVID-19 pandemic kept us from...
by Sydney Johnston | Jun 28, 2022 | Research
Published on June 28, 2022 | Laura Onuchic, M.D., Yale School of Medicine How did you first get involved in PKD research? Laura Onuchic: The fight against PKD has been a part of my life for as long as I can remember. Both my parents are incredible medical...
by Sydney Johnston | Jun 21, 2022 | Awareness, Fundraise Your Way
Published on June 21, 2022 | A PKD patient, advocate, and PKDF volunteer, Glenn Frommer organized the RideForPKD to raise $500,000 for PKD research. On May 1, Glenn Frommer kicked off his journey across the country. And after nearly two months on the road, we’re...
by Sydney Johnston | Jun 14, 2022 | Education
Published on June 14, 2022 | With polycystic kidney disease, there is a 50% chance of passing the disease to children. Due to the high chance of passing PKD to future generations, many have questions about genetic testing. To better understand the role of genetic...
