Advocacy
Awareness
Education
Research
PKD Walk: Meet Sue Truhlar
Walk for PKD — Twin Cities The first fall Walk for PKD event is just around the corner. Throughout the country, participants are breaking in their walking shoes and beginning this year’s fundraising efforts. In preparation, we caught up with Sue Truhlar, a...
August Recess: Make your Voice Heard
As the only organization in the U.S. solely dedicated to finding new treatments and a cure for PKD, we understand how important it is to increase awareness of the disease and showcase its impact on patients, their families, and caregivers. Sharing the PKD message...
ADPKD Registry: Making enrollment a Foundation priority
The PKD Foundation prides itself on being an accessible resource for PKD patients, families and caregivers. But we also understand the need to provide practical ways for PKD patients to play a proactive role for themselves and future generations. The upcoming ADPKD...
Understanding the “Advancing American Kidney Health” executive order
Last Wednesday, Director of Government Affairs Alexis Denny attended the signing of an executive order titled Advancing American Kidney Health. This order and its accompanying policies mark one of few times a sitting president has brought chronic kidney disease —...
PKD Walk: Moving PKD research forward!
Mark your calendars, because the first fall Walk for PKD event is just two months away. This year, 54 Walk for PKD events will take place across the country with a goal of raising $2,000,000 for PKD research. The family-friendly events are the largest gathering of...
Participating in research – why PKD patient registries are important
Published June 18, 2019 We spoke with Lisa M Guay-Woodford, MD, Children’s National Health System, about the Autosomal Recessive Polycystic Kidney Disease Database and why it’s important to the PKD community. How many children have PKD in the United States? Who...
-
Walk for PKD — Twin Cities The first fall Walk for PKD event is just around the corner. Throughout theRead More -
As the only organization in the U.S. solely dedicated to finding new treatments and a cure for PKD, we understandRead More
-
The PKD Foundation prides itself on being an accessible resource for PKD patients, families and caregivers. But we also understandRead More
-
Last Wednesday, Director of Government Affairs Alexis Denny attended the signing of an executive order titled Advancing American Kidney Health.Read More -
Mark your calendars, because the first fall Walk for PKD event is just two months away. This year, 54 WalkRead More -
Published June 18, 2019 We spoke with Lisa M Guay-Woodford, MD, Children’s National Health System, about the Autosomal Recessive PolycysticRead More
