As a PKD patient and transplant recipient, going on trips takes extra organization. I joke that half my suitcase is filled with medical items such as my blood pressure cuff, thermometer, medical journal, ice packs, snacks, first-aid supplies, and medicine. As the...

Valen's husband, Noah, offers insight into what it's like to be a caregiver to a PKD patient. I sat with my face in my hands as the fifth person tried to start an IV in Valen’s delicate veins. She was trembling vigorously, staring at the ceiling; her tired eyes...

“Mom, my head hurts!” As a 5-year-old, I stood in the kitchen repeating those four words several times, each time louder, until I fell to the floor and had my first grand mal seizure. This is the day I became a patient and my parents became caregivers. Neither role...

Trick-or-treating is in full effect! Our homes, offices and bellies are likely full of candy, and it is only the beginning. When I worked at an office job, I was in awe of the amount of candy and baked goods that flooded our office this time of year. My bosses...

I believe setting and achieving goals is important for all of us, especially while enduring health issues. Instead of having a to-do list for every new day, I like to view it as a goal list. Every evening, I think of what I would like to accomplish the following...