PKD Will
Not Beat Me
Overcoming Setbacks
There are things we can try to plan for in life, both as regular folks and as PKD patients. These can range from saving money to purchase a home, to preparing for dialysis and transplantation. Then there are moments that just happen; the times that are out of our...
Finding Your Vortex
As my mom and I stood separately on each side of the Airport Vortex in Sedona, Arizona, the view was powerful yet calming. A vortex is a site where spiritual energy is concentrated – a globally recognized power spot. It is usually on or near an interesting rock...
Health and Information Overload
For some of us, PKD is not our only health issue. In addition to living with PKD and being a kidney transplant recipient, I have epilepsy and serious back issues. I did not have any health hiccups last month, but even during a quiet month I have routine health...
Facing Fatigue
I’m a go-getter. I like to soak in and accomplish as much as I can each day. My body does not always allow me to do what my mind wants or thinks it can do. When living with chronic health issues like PKD, fatigue can become a part of our lives. When both of my...
PKD Messenger
On PKD Awareness Day, Sept. 4, 2015, my family and I used window markers and excitedly decorated our car in a parking lot in Arizona. Our messages ranged from “PKD Awareness Day, PKD Patient Inside” to “PKD Will Not Beat Me.” As we adorned our car for the occasion,...
Why I Walk
I fondly remember being in my early 20s and sitting on my living room floor calling one person after another from a contact list the PKD Foundation gave me. I was calling PKD families in south central Pennsylvania, introducing myself and letting them know I was...
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There are things we can try to plan for in life, both as regular folks and as PKD patients. TheseRead More -
As my mom and I stood separately on each side of the Airport Vortex in Sedona, Arizona, the view was powerfulRead More
-
For some of us, PKD is not our only health issue. In addition to living with PKD and being aRead More
-
I’m a go-getter. I like to soak in and accomplish as much as I can each day. My body doesRead More
-
On PKD Awareness Day, Sept. 4, 2015, my family and I used window markers and excitedly decorated our car inRead More
-
I fondly remember being in my early 20s and sitting on my living room floor calling one person after anotherRead More
Page last reviewed November 2022
