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PKD Foundation Centers of Excellence

The PKD Centers of Excellence program is based on the belief that the best way to provide PKD-centered care is through patient-focused, comprehensive care coordinated and support by an integrated care team.

PKD Foundation ADPKD Registry

The ADPKD Registry is patient-powered and patient-centered. Patients answer questions about their health and PKD’s impact on their life to help create an essential resource for researchers to develop better outcomes that reflect patient perspectives.

Resources for Caregivers
Confidently Navigating ADPKD: Understanding the New KDIGO Guidelines, Decoding ADPKD: Diagnosis, Prognosis, & Genetics
  • ADPKD
  • Caregivers
  • Drug Therapy and Treatments
  • Education
  • Living with PKD
  • Newly Diagnosed
  • PKD News
  • The Basics of PKD
Confidently Navigating ADPKD: Understanding the New KDIGO Guidelines, Decoding ADPKD: Diagnosis, Prognosis, & Genetics
5 Powerful Updates to the ADPKD Registry
  • ADPKD
  • ADPKD Registry
  • Caregivers
  • Research
5 Powerful Updates to the ADPKD Registry
PKDCON 2023: PKD Manifestations ‘Outside’ of the Kidneys
  • ADPKD
  • Caregivers
  • CHF
  • Children
  • Congenital Hepatic Fibrosis
  • PKD Parents
  • PKDCON
  • Wellness
  • Young Children
PKDCON 2023: PKD Manifestations ‘Outside’ of the Kidneys
PKDCON 2023: Networking: Finding mentors and Building your Village
  • ARPKD
  • Caregivers
  • Children
  • PKD
  • PKD Parents
  • PKDCON
  • Young Children
PKDCON 2023: Networking: Finding mentors and Building your Village
PKDCON 2023: How to Navigate the Emotions of Having a Child Diagnosed with PKD
  • ADPKD
  • ARPKD
  • Caregivers
  • Children
  • PKD
  • PKD Parents
  • PKDCON
  • Wellness
  • Young Children
PKDCON 2023: How to Navigate the Emotions of Having a Child Diagnosed with PKD
Introduction to PKD: What should I know about PKD?
  • ADPKD
  • ARPKD
  • Caregivers
  • Education
  • Living with PKD
  • Newly Diagnosed
  • Research
  • The Basics of PKD
Introduction to PKD: What should I know about PKD?
Losing a Child with ARPKD
  • ARPKD
  • Caregivers
  • Family Life
  • PKD Parents
  • Young Children
Losing a Child with ARPKD
Managing Mental Health and PKD
  • ADPKD
  • ARPKD
  • Caregivers
  • Education
  • Family Life
  • Living with PKD
Managing Mental Health and PKD
The PKD Foundation does not offer medical advice. The information shared on this website is not intended to be a substitute for professional medical advice, diagnosis, or treatment. We strongly recommend that your care and treatment decisions be made in consultation with your healthcare professional team.