by Sydney Johnston | May 11, 2022 | Advocacy
Published on May 11, 2022 | On April 27, The PKD Foundation hosted Virtual Advocacy Day. This free event was open to every member of the PKD community—patient, caregiver, researcher, etc. Together, they met with federal lawmakers around the country to advocate for the...
by Sydney Johnston | Apr 5, 2022 | Advocacy
Published on April 5, 2022 | Launched in 2020, the Advocacy Champions Network (ACN) is an exclusive community of patients, family members, and clinicians dedicated to improving the lives of people living with PKD. The inaugural ACN class consisted of 36 members from...
by Sydney Johnston | Mar 22, 2022 | Advocacy
Published on March 22, 2022 | The PKD Foundation is excited to announce that registration is now open for PKDF Virtual Advocacy Day 2022 taking place on Wednesday, April 27! As the only organization in the U.S. solely dedicated to finding treatments and a cure for...
by Sydney Johnston | Feb 1, 2022 | Advocacy, Education
Published on February 1, 2022 | Recruitment is now open for the PKD Foundation Peer Ambassadors Program! Created to build new bridges between the Foundation and previously underserved communities, the goal of the Peer Ambassadors Program is to engage new audiences...
by Sydney Johnston | Dec 21, 2021 | Advocacy
BE Published on December 21, 2021 | Recently, we hosted our inaugural Advocacy Champions Network (ACN) Awards Ceremony. Together, we honored and celebrated PKD advocates who’ve dedicated significant time to improving the lives of people living with PKD....
by Sydney Johnston | Oct 7, 2021 | Advocacy
Published on October 7, 2021 | For nearly 40 years, the Orphan Drug Tax Credit (ODTC) has served as an incentive to research and produce medications that are safe and effective for rare conditions, such as PKD. It allows companies to write off 25% of qualified...
