by PKD Foundation Staff | Aug 7, 2019 | Awareness, Q and A, Walk for PKD
Walk for PKD — Twin Cities The first fall Walk for PKD event is just around the corner. Throughout the country, participants are breaking in their walking shoes and beginning this year’s fundraising efforts. In preparation, we caught up with Sue Truhlar, a long-time,...
by PKD Foundation Staff | Aug 2, 2019 | Advocacy, Awareness, Education
As the only organization in the U.S. solely dedicated to finding new treatments and a cure for PKD, we understand how important it is to increase awareness of the disease and showcase its impact on patients, their families, and caregivers. Sharing the PKD message is...
by PKD Foundation Staff | Jul 23, 2019 | ADPKD Registry, Advocacy, Awareness, Education
The PKD Foundation prides itself on being an accessible resource for PKD patients, families and caregivers. But we also understand the need to provide practical ways for PKD patients to play a proactive role for themselves and future generations. The upcoming ADPKD...
by PKD Foundation Staff | Jul 16, 2019 | Advocacy, Awareness
Last Wednesday, Director of Government Affairs Alexis Denny attended the signing of an executive order titled Advancing American Kidney Health. This order and its accompanying policies mark one of few times a sitting president has brought chronic kidney disease — and...
by PKD Foundation Staff | Jul 9, 2019 | Awareness, Walk for PKD
Mark your calendars, because the first fall Walk for PKD event is just two months away. This year, 54 Walk for PKD events will take place across the country with a goal of raising $2,000,000 for PKD research. The family-friendly events are the largest gathering of PKD...
by PKD Foundation Staff | Jun 18, 2019 | ADPKD Registry, ARPKD, Awareness, Research
Published June 18, 2019 We spoke with Lisa M Guay-Woodford, MD, Children’s National Health System, about the Autosomal Recessive Polycystic Kidney Disease Database and why it’s important to the PKD community. How many children have PKD in the United States? Who will...
