by admin | Oct 14, 2015 | PKD Will Not Beat Me
There are things we can try to plan for in life, both as regular folks and as PKD patients. These can range from saving money to purchase a home, to preparing for dialysis and transplantation. Then there are moments that just happen; the times that are out of our...
by admin | Oct 8, 2015 | PKD Will Not Beat Me
As my mom and I stood separately on each side of the Airport Vortex in Sedona, Arizona, the view was powerful yet calming. A vortex is a site where spiritual energy is concentrated – a globally recognized power spot. It is usually on or near an interesting rock...
by admin | Oct 1, 2015 | PKD Will Not Beat Me
For some of us, PKD is not our only health issue. In addition to living with PKD and being a kidney transplant recipient, I have epilepsy and serious back issues. I did not have any health hiccups last month, but even during a quiet month I have routine health...
by admin | Sep 24, 2015 | PKD Will Not Beat Me
I’m a go-getter. I like to soak in and accomplish as much as I can each day. My body does not always allow me to do what my mind wants or thinks it can do. When living with chronic health issues like PKD, fatigue can become a part of our lives. When both of my kidneys...
by admin | Sep 17, 2015 | PKD Will Not Beat Me
On PKD Awareness Day, Sept. 4, 2015, my family and I used window markers and excitedly decorated our car in a parking lot in Arizona. Our messages ranged from “PKD Awareness Day, PKD Patient Inside” to “PKD Will Not Beat Me.” As we adorned our car for the occasion,...
by admin | Sep 10, 2015 | PKD Will Not Beat Me, Walk for PKD
I fondly remember being in my early 20s and sitting on my living room floor calling one person after another from a contact list the PKD Foundation gave me. I was calling PKD families in south central Pennsylvania, introducing myself and letting them know I was...
